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Autism increase
stirs awareness, detection efforts
The lanky youth sauntered by our
booth, his pristine New York Yankee uniform gleaming in the
afternoon sun.
He paused to read our banner,
"Pathfinders for Autism," then kept walking. After all, we were in
the Orioles Community Relations booth and judging from the detail of
his outfit, he was a very loyal Yankee fan.
The second time he passed, he must
have seen the free baseball cards sign. He moseyed up to the counter
and asked about them. We gave him the card featuring Oriole B.J.
Surhoff with information about autism and Pathfinders replacing the
usual player statistics. B.J. has a child with autism. So do I.
Then the young fellow noticed our
bright blue "Pathfinders for Autism" wristbands. A few minutes
later, he came back with his mom, dad and sister. They all bought
wristbands.
I learned that we shared a mutual
foe: autism.
In the last three months, autism
issues have permeated the press. Newsweek's Feb. 28 cover displayed
a smiling baby with the feature story, "When Does Autism Start?" NBC
launched a weeklong, round-the-clock series to examine the issue.
The Sun reported on the early detection of autism and featured an
op-ed piece about current early detection legislation.
Why all the focus? The statistics are
startling.
Twenty years ago, one in 10,000
children was diagnosed with autism. Today it affects as many as one
in 166 children, according to the Centers for Disease Control and
Prevention.
Many ask if autism cases are
increasing or if doctors have better means of diagnostics. While the
researchers sort that out, parents with autistic children continue
their daily struggle.
"There is no one protocol for
treating our kids," Brian Mund, president of the Pathfinders Board,
says. "Autism is a spectrum disorder ranging from high functioning
individuals to lower functioning, nonverbal children."
Autism typically appears during the
first three years of life and is usually a lifelong developmental
disability. There is no known cause or cure.
Autism changes your life forever.
At another Yankee game, Mike Ford,
vice president of Pathfinders worked the booth with his daughter,
Allie.
"For the first hour, the only buyers
were Yankee fans," he says. "Many said they had a child with autism,
knew a child with autism or taught autistic kids. It was amazing."
Mund's son, Mickey, is nonverbal. My
daughter, Madison, speaks with scripted phrases taught in a
specialized therapy. Surhoff's son, Mason, is proficiently verbal
(after years of intensive therapy) and gifted with total recall for
dates, times and historical events. And Ford's son, John, is now
fully included in the classroom without assistance.
Yet, all display behaviors that
indicate their intense difficulty to communicate.
The good news is that early
intervention helps and that educators, physicians and legislators
are beginning to respond.
"Intervention before three years of
age yields better outcomes than after 4 years of age," Dr. Rebecca
Landa, director of the Center for Autism and Related Disorders at
the Kennedy Krieger Institute, said at an Annapolis legislative
hearing in support of a pilot early-detection program. Her before-
and after-therapy tapes clearly demonstrated improved communication.
And the "what if" question haunts us:
"What if our children had been given this type of therapy at a
younger age?"
But we move on, grateful for the
progress we have made and hopeful for the possibilities the future
can bring.
And perhaps discovering some unusual
allies, even Yankee fans, along the way.


05/11/05
The Towson Times
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