Paralysis can
renew life's goals
IT'S BEEN THREE years since I have
danced. Three years since I have broken a sweat at the gym. Three
years since I have run and jumped with my kids. Fact is, it's been
three years since I have walked.
On Feb. 12, 1997, I awakened in the
early morning with strange shooting sensations in my legs. I had had
the flu for about week but had no idea that this seemingly ordinary
bug would put me in a wheelchair, possibly for the rest of my life.
Six hours later, knife-like bolts of
pain shot their way up my legs to my waist, permanently relaxing my
muscles as the paralysis stopped short of the need for a ventilator.
With this life-altering event, I joined the journey of the rare one
in 1.34 million people who go to bed with a flu-like illness and
wake up with Transverse Myelitis, the cause of my paralysis.
The past three years have been filled
with adjustments. Ironically, the great immobilizer launched
unprecedented growth in creativity as well.
I've boogied with the best of them
from the confines of my chair. I break a sweat three times weekly
with free weights and dyna-bands as I build my upper body strength.
I've also learned how to play with my
kids, again.
Peter, 5, started T-ball games in the
spring. I learned I could pitch to him if I angled my wheelchair
slightly to the left and leaned way over to the right, steadying my
body with my left hand on my right armrest as I threw.
Brittany, 11, a blonde bombshell,
excelled in softball as a pitcher. I learned I could still swing a
mean bat so long as my brakes were solidly locked.
I can still spiral a football and
dribble a basketball. It's not pretty, but I do it.
But then came soccer season.
My sensation level begins about an
inch above my navel, T-8, to be specific. I've had some return below
that level, but my hips and legs remain basically immobile and numb.
So my thoughts of soccer were as a spectator.
But Peter had other ideas.
"Mom, I have a soccer game on
Saturday. I need to be the best. I need to practice," he said
emphatically.
"Sure, Pete. Let's go!" I spoke
before I thought. About half way down my ramp leading outside, I
began to wonder how I could possibly play with him. I can only use
my arms and hands, the very things that are illegal to use in
soccer. My mind was churning. Figuring.
I checked his attire. "Pete, you
forgot your shin guards." Right, like I am going to kick him in the
shins! I laughed out loud at the thought, but Pete nevertheless
obediently put them on.
As I rolled into the driveway, it hit
me. I could be a goalie.
"Pete, I'm the goalie and you try to
kick the ball past me into the garage door." I directed. "And, the
other garage door will be my goal," I knew I'd never score, but the
idea sounded good. We had to be fair about this.
So we played.
He'd kick and I'd roll. He'd shoot
and I'd block. He'd shoot and he'd score. He'd shoot and I'd block
... and it ricocheted into my goal.
What great fun. I even won a few
games. He sharpened his shooting skills, and I got the best workout
I've had in a long time. My whole trunk is sore and my thumbs have
tread marks on them!
But it was worth it. During
Saturday's game, he scored the first goal.
Yes, soccer, wheelchair style.
One never knows when exclusive terms
can become inclusive if we decide to live in the present and apply
our minds to the moment we have.


Sep 11 2000,
The Baltimore Sun
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